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      Autoinflammatory Patient & Family Day 2019 in Bethesda, MD in Chevy Chase


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      August 24, 2019

      Saturday  10:30 AM

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      EVENT DETAILS
      Autoinflammatory Patient & Family Day 2019 in Bethesda, MD

      In honor of Autoinflammatory Awareness Month, we are welcoming patients of all ages, their family and doctors to come for a day of engaging talks, Q & A with autoinflammatory disease experts, lunch, treats, plus supervised activities for children, so parents can enjoy the presentations.  Experts on autoinflammatory diseases will be speaking on various topics, including: Unmet needs for autoinflammatory disease patients of all ages Diagnostic session: Featuring talks on genetic testing, latest research, symptom tracking apps and more Treatments session: Including talks on available treatments, resilience, psychosocial care Transition to adult care, with useful new apps for patients, plus helpful resources for adults and children Q & A sessions with medical experts, adult patients, and others The Jane Lawton Community Center Social Hall, and Art Room are reserved for our activities, and we also will have access to the playground and field areas for outside fun.  Admission is free! T-shirts will be provided for all guests that register before August 1, 2019, and as available after that date. Please indicate the t-shirt size for EACH attendee coming in the final registration screen. If you have any food allergies or dietary restrictions, please indicate the needs for EACH registrant in the final registration page. We will try our best to accommodate your needs for the lunch and snacks on the 24th.  We are trying to plan accordingly for activities. Please tell us what may be of interest to you, or your family members attending in the final registration screen. We also want to know if you are interested in attending the NIH-WRNMMC Autoinflammatory & Immune Dysregulatory Symposium on August 22-23, 2019, so please indicate your interest in the final part of this registration.  We will share a link for registration for that conference with you as soon as it is available. The NIH-WRNMMC Autoinflammatory & Immune Dysregulatory Symposium is also FREE to all registrants and will be held at the National Institutes of Health (NIH) Lipsett Auditorium in Bldg 10. The Autoinflammatory Alliance is managing thiat conference as well, but this is a separate event from the patient program on Saturday, with separate funding from the Autoinflammatory Alliance, the SJIA Foundation, and the NIH NIAID and NHGRI Hotel Reservations: The Lawton Community Center is within walking distance of the Hyatt Regency Bethesda, where we have a block of rooms available to be booked at this link: https://www.hyatt.com/en-US/group-booking/BETHE/G-WRNM Please book your hotel room before July 26th on this booking link, and note the terms in the booking.  The hotel is also right at the Bethesda Metro Station on the Metro Red Line, one stop away from the NIH-WRNMMC Medical Center Metro Stop, and a few stops away from the National Zoo, and downtown DC.  FAQs How can I contact the organizer with any questions? Please email Karen Durrant at karen@autoinflammatory.org with any questions.    What are my transportation/parking options for getting to and from the event? There are a limited number of parking spaces at the Lawton Community Center, but it is a short walk from the Bethesda Metro Station, and the Hyatt Regency Bethesda Hotel. 

      Categories: Health & Wellness

      Event details may change at any time, always check with the event organizer when planning to attend this event or purchase tickets.